children's mental health
Dani Reichert

A Moms Journey With Her Children’s Mental Health

children's mental health
Dani Reichert

A Moms Journey With Her Children’s Mental Health

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I want to share my journey with my children’s mental health.  I am the mother of a beautiful 21-year daughter.  She has had more than her fair share of struggles through the education system and facing mental health challenges.  In my parenting journey, I learned to expect the unexpected.  I had the rug pulled out from under me and still ended up on my feet.   I want to share my story to provide the hope and confidence that you can do it if you are a parent like me.  You are your child’s champion.  I am also an occupational therapist that has worked with hundreds of children with disabilities.

Noticing early developmental delays in my baby

My journey began when my daughter was an 18-month-old baby, with sensory issues and a significant speech and language delay, and ultimately diagnosed with developmental apraxia of speech.   She went to a special preschool program in town through the public school system, qualified for Birth to Three services, and got the services she needed. Life was good. ☺️

Early school years and her first IEP

Her IEP carried over into elementary school, and she continued to receive speech therapy weekly. By the time she was in 3rd grade, however, I knew there was something more than just speech going on.  She was struggling to read at grade level and had short-term memory deficits and anxiety. As a parent, I knew we could request a PPT (Planning Placement Team) at any time, so I did.  After discussing my concerns and reviewing a checklist for Specific Learning Disabilities, I walked out of there with a new identification – specific learning disabilities.  Goals were added to her IEP for reading as well as reading support. Life was good again.

Middle school years

In 5th grade, we were having her transition PPT and triennial review. While I thought I was prepared for a seamless transition to middle school, I had the rug pulled out from under me. She “tested out” for special education. Most parents would be thrilled that their child “graduated” from special ed. However, I was not fully on board with their decision. No more speech therapy or reading help. I refused to leave that meeting without at least a 504 plan. Determination? Anxiety. I requested they transfer everything in her accommodations and modifications page of her most recent IEP. They agreed, probably to get me out of there as quickly as possible.

High school years

Her 504 Plan, which was now for anxiety and executive functioning, carried her through the rest of her high school years.  She had across-the-board testing requested in the Spring of her Junior year. I needed to prepare her to transition from high school to college or the community.  I knew she would need support in many areas.

Mental health challenges for my young adult

Fast forward: Today, she is 21 years old. She made it through one year of college (barely) with many supports in place. Unfortunately, her mental health got the best of her, and she had a major breakdown in Fall 2019. She has been in and out of facilities for self-injurious behaviors and major depression (ask me about navigating that process) and has currently qualified for the Department of Mental Health and Addiction Services (DHMAS) in town. She has been diagnosed with everything from anxiety, reactive attachment disorder, depression, schizoaffective, OCD, and cognitive-communication disorder. Her reading comprehension is at an 8th grade level. She has been receiving therapy since she was 12 and continues weekly. She played the medication game, on and off several, gained weight (side effect of meds), and is currently unmedicated per her choice.

I am pleased to report that through DHMAS, in addition to her weekly therapy sessions, she will be seeing an OT for daily living, community, and social skills.  Somehow things are working out, but it took a LOT of research and planning (and delays due to COVID-19) on my part navigating for her young adult transition (ask me about that process) for her to get the help she so needs and deserves. I found parent support groups, specifically the National Alliance for Mental Illness (NAMI), and learned as much as I could about mental health diagnoses. To this day, I rely on my NAMI binder as situations come up.

Reflections as a parent

I often wonder if I had fought harder during her school years, would she have gotten the help she needed? Would it have avoided a breakdown later?  To this day, she struggles in so many areas, with an underlying language processing disorder and articulation issues. Executive functioning is a daily challenge as well as decreased social skills. She was always that “borderline, on the cusp” kid that fell through the cracks of special education.  Not significant enough to get the services she so desperately needed, but she still struggles daily in all aspects of her life.

I felt like the system let me down and I had to do what I could to advocate for her going forward.  This child had been through extensive testing all of her life: Autism, neuropsychological, psychoeducational, speech and language, had outside speech therapy and social skills training, plus a myriad of medical tests.

 

A mother's journey raising a daughter with special needs and mental health struggles

I hope this information could be helpful for those of you whose child is on the cusp like mine. If you would like to know more about how I navigated the system (special education and mental health) find me on Vitalxchange.

Dani Reichert on Vitalxchange

 

About the Author

Hi! I’m an occupational therapy professional with 15 years of experience servicing children ages 3-21 in the public school system. My specializations include: assistive technology, ADHD, and Autism Spectrum Disorder, although I service children with a variety of special needs and disabilities. My real connection into pediatrics began after we adopted our daughter from South Korea in 2001. She came to us with unique needs at about 1 1/2 yrs old (she’s now 21) and I’ve been advocating for her ever since. I have years of experience attending PPT’s and 504 meetings while wearing two hats: one of a parent advocating for her child and one as a professional advocating for students. My passion is being able to help children navigate their world by learning through play using easily accessible and inexpensive items (I love the Dollar Store!) or out in nature. By creating safe and meaningful therapeutic activities while thinking “out of the box” helps keep it fun and engaging! I strive to help children become more independent in all areas of their life, from Preschool to High School, and transition skills into the community. Lets put the “Fun” in “Function” together!

Want to be the best parent you can be to your amazing child?

Sign up for our Beta – You get free access to our platform for 90 days (a $59.97 value)* – no credit card required.

What you get:

  1. Weekly personalized parent and play activities to do with your baby
  2. Your own parenting concierge to make sure you and your family are doing well
  3. Specialists to help answer questions on specific child development topics 

 

Sign up now and we’ll send you details about the program and how to participate.

*After 90 days, a credit card will be required and you will be charged $19.99 per month.  There is no commitment and you can cancel anytime.

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